We all know how important Children’s books are for young developing minds. AEΩ Foundation’s Amour Fund is proud to work on a children’s story book with Nare Garibyan – a talented author and journalist based in Los Angeles.
The storyline outlines the adventures of a little boy who moves around differently, communicates differently and goes on an adventure with his two friends to find the “glycan fruit” he has been searching for. The story uses subtle illustrations and words to teach the message of “being different is ok”, and that children with disabilities can overcome adversity with determination, be heroes, and live an inspiring life.
To bring this story of acceptance, bravery and hope to our Community, we need your help.
Your generous donations will assist us to fund the illustration, design, printing, and publication of a children’s story book inspired by a boy, who lives with a rare disease, called Congenital Disorders of Glycosylation (CDG). This young boy lives with CDG every day with courage, hope, resilience, joy and laughter despite the challenges he faces due to CDG.
We are also offering the fundraising level incentives listed below to kick off this campaign in hopes that many of our contributors are interested in providing a sponsorship toward this project.
Every donation amount will help us bring this book closer to reality. Your contribution will help raise awareness of CDG, rare diseases and disabilities in general. All proceeds from the sale of the book will be used to fund CDG research.
This project is led by
AEΩ brother: Misak Zetilyan
For direct questions about this project, you may reach via email:
For additional updates you can visit: