The AEΩ Foundation’s Amour Fund is dedicated to supporting and financing research in finding a cure for Congenital Disorders of Glycosylation (CDG). The fund also aims to raise awareness and advocate for the disorder.
Congenital Disorders of Glycosylation are a large group of genetic disorders that affect the addition of sugar building blocks (glycans) to proteins in cells throughout the body. The addition of glycans to proteins is critical to the healthy function of cells.
Amour means ‘Resilient’ in Armenian and ‘Love’ in French. It’s not a coincidence that CDG kids are Amour. Our goal is for children with CDG to be ‘Amour’ so that they can live to their fullest potential, walk, talk, smile and laugh like all children. The ultimate vision of the Amour Fund is to find a cure for Congenital Disorders of Glycosylation (CDG) by supporting CDG research. Amour fund honors disadvantaged children, raises awareness about rare diseases, advocates for screening, and provides assistance to those in need.